This is by far the hardest post we’ve had to write, but we learned some sad news last week and felt it was time to share with all of you … our precious little baby has Trisomy 18.
Trisomy 18 is a chromosomal abnormality/genetic defect – essentially a fluke – second only in occurrence to Downs Syndrome. Sadly, Trisomy 18 is considered “incompatible with life”. Most babies die before birth, and the few who do make it typically live just a few minutes, hours or days. A very small number of babies (<10%) live at least one year.
At this point, we don’t know what the future holds for MiniMarr, but are planning to carry this little baby as long as he/she will allow us to. We know the outlook is grim, but we’re holding on to hope and praying that God will guide us. We are so sad to know that our little baby won’t have the life we dreamed of, but we still love him/her very much and just ask for your love and support.
Despite the incredible loss we’re experiencing, we know how lucky we are to have such amazing family and friends and we are beyond grateful for them. We especially want to thank our parents and sisters for being such an immense support to us over the last week. We know how much they are hurting too, but they’ve been so strong for us and we truly would not have survived without them.
If you’re interested in more information, the Trisomy 18 Foundation is an excellent reference.
Love,
Pat and Laurie
I love you guys so so much. You’re always in my thoughts and prayers. No matter what, I’m here for you and Minimarr, forever and ever.
Laurie and Pat,
You and the baby are continually in our thoughts and prayers every single minute…..God bless and keep you and your precious baby always in his care. We love you and offer our support always. Mom and Dad Marr
Dear Laurie & Pat,
We love you so very much. You and your precious baby are in our thoughts & prayers. We pray that God will give you comfort, strength & peace.
All our love,
Mom & Dad C.
Laurie and Pat dears,
Keeping you in my thoughts and prayers constantly. I know that God will guide you and give you the necessary strength to persevere on your journey taking care of precious Minimarr. There is a world of love and support awaiting this darling child.
With all my love,
Nana xoxoxo
One day at a time. I love you both so much and cannot stop thinking about you and praying for you. I know that somehow, someway you will find the strength to get through this. I am always here, even if I’m far away.
Love you always,
Kris
Laurie and Pat,
My heart breaks for you. I love you both and am so sorry! I am here for you always and your family is in my prayers. Much, much love. Jamie
We’re thinking and praying for you both, for Minimarr, and for your families. We love you.
We love you and are thinking about you both… we are here if you need anything at all.
Dear Laurie and Pat:
We are thinking of you daily and we are praying for all of you. We love you and please know that we are always here for you…
Much love,
Auntie Pam and Uncle Steve
Dear Laurie & Pat,
We are thinking of you and you are all in our prayers.
God will help you find the strength during the difficult times ahead. You are very special and we love you very much.
Love,
Aunt Barbie and Stu
Dear Laurie & Pat,
You are a wonderful, loving couple. We are thinking of you and sending you our prayers, and know your faith and the love of your devoted parents, family and friends will be your guideposts.
Love to you, Lynne & Steve, Dan and Amanda
Pat & Laurie,
You are in our thoughts and prayers. We love you and are here for you. We hope the love and support from family and friends will help you during this difficult time.
Love and HUGS,
Uncle Terry and Aunt Ann
Dear Pat and Laurie, You can count on my prayer and support. In fact, you can count on the support and prayer of about 1600 SND’s as well as some Good Shepherds and Franciscans! May God continue to bless you with hope and courage…You are both blessings to your families. Love you, Aunt Mo
Dear Pat and Laurie,
Since we heard, we have been praying to the Blessed Mother for the three of you; know that you are always in our thoughts and prayers.
All our love,
Peter, Connie, Katherine, Emily & Jennie
We will all continue to celebrate the tremendous gift that MiniMarr is! I love all three of you. If you want to seek refuge in a place in Allston that smells of beef and cheese, come on over. I will be here for you guys always. XO.
You both are stronger than you know and have hundreds of people supporting you and thinking of you. Keep your chin up and take care of each other.
Love,
Jenny
Dear Laurie & Pat,
You are very brave and Minimarr is lucky to have you as parents. We have been praying and thinking of you all since we heard.
Love,
Diane & Dan
Dear Laurie & Pat,
I am so sorry to hear the news. I pray for you both, you are a great couple. Lean on each other during this difficult time and you wil become stronger. God will take care of you and your baby.
I’m so very sorry to hear the news. All three of you will be in my thoughts. Please don’t hesitate to ask if I can do anything, anything at all.
Dear Laurie and Pat,
Your precious baby has been given the gift of two wonderfully special and loving parents in both of you. Remember the love that you both share and trust in God to help you each day. We love you and are here for you always. Auntie Di & Uncle Mike.
You have been and will always continue to be in my thoughts and prayers. I love the three of you to pieces.
xoxo